shaza Posted March 6, 2011 Share Posted March 6, 2011 Hi all. We had our meds on friday and all was going well until they got to my 4yr old son who has a medical condition called Tuberous Sclerosis. Basically it means he has benign tumours on his brain & in his heart which causes Epileptic fits. Sounds serious but if you knew him you would see he's a normal 4yr old, no learning/behaviour problems on any other problems. He was diagnosed in January 2009 after having 5 seizures in a week. He was put on medication (which he takes twice a day) and thank god he has been seizure free since. His consultant is hoping to take him off his meds if he is seizure free for 3 years, fingers crossed. The dr that did our meds has asked for more info on his condition, and long term prognosis even though we gave her 12 pages of reports to read. Im very concerned now that they wont give us a visa because of this so I wanted to know what medical condition you have had and still been given a visa? Has anyone with epilepsy or simular ever been given a visa? Also if we are refused can we appeal? Sorry its long but really worried and need advice please :unsure: Thanks x Link to comment Share on other sites More sharing options...
Scarby Posted March 6, 2011 Share Posted March 6, 2011 Hi, We went for our medicals in December during which time I was having investigations into a blood clot that I had in October which they thought was caused by a hole in my heart that I had since childhood, my consultant had said that I would need an operation to close the hole up and I mentioned all this at the medical, when the results were sent to Adelaide it said on my file that it had been refferred and we were waiting to be asked for further information but were granted a visa with no questions at all. Hope this helps a bit. Celia Link to comment Share on other sites More sharing options...
Guest MaybeOz Posted March 6, 2011 Share Posted March 6, 2011 At the time of our medicals .... Hubby had high blood pressure, actually it was "white coat syndrome" and, eventually (several weeks after our actual medicals), he finally got the required 3 OK readings done at our GPs. Our middle son has / had SVT (Supraventricular Tachycardia) which is a heart condition and was taking daily beta blocker medication at the time. I had three slipped & ruptured discs in my back. Ongoing medical problems - Hubby gets severe gout and takes daily medication for it. Apart from that, everything else was fine!! We passed our medicals :yes: Good luck Kari :wubclub: Link to comment Share on other sites More sharing options...
calNgary Posted March 7, 2011 Share Posted March 7, 2011 Hi Its quite normal to be asked for further information, even if you have submitted extra paperwork. Also be prepared to recieve notification to go and have another consultation with a private Panel Specialist who specialises in your sons condition. All the above happened to me, at the time i was nearly having a nervous breakdown,but it didnt stop the visa being granted and i have been here over 4 years now. Good Luck and i know its easy for me to say ,but try not to worry Cal x Link to comment Share on other sites More sharing options...
shaza Posted March 7, 2011 Author Share Posted March 7, 2011 Thankyou all for your replies. Im hoping that once they look into my sons condition they will see he wont be a major burden. I think its just seeing EPILEPSY that concerns people. We've managed to get hold of his consultant & she is going to write up a report for us. His nursery teachers have also said they would write a report of his social/behaviour/learning which may help, who knows? Anyway glad it worked out for you all & thanks again. Link to comment Share on other sites More sharing options...
Guest MaybeOz Posted March 7, 2011 Share Posted March 7, 2011 Thankyou all for your replies. Im hoping that once they look into my sons condition they will see he wont be a major burden. I think its just seeing EPILEPSY that concerns people. We've managed to get hold of his consultant & she is going to write up a report for us. His nursery teachers have also said they would write a report of his social/behaviour/learning which may help, who knows? Anyway glad it worked out for you all & thanks again. The more info you can get the better. With my son's heart condition his Paediatrician/Cardiologist wrote a report stating that on his medication he had never had any repercusions of his condition and that it was highly likely he would grow out of it but if not then he could have a very simple proceedure to rectify the problem. Everything crossed for you and I completely understand your anxiety; been there done that! :wub: All the best, Kari :wubclub: ________________________ Need a CV/Resume? PM me or email: TheWrittenProof@gmail.com Link to comment Share on other sites More sharing options...
Ken Posted March 7, 2011 Share Posted March 7, 2011 Type 1 Diabetes and high blood pressure (and I was the main applicant). The doctor doing the medical ran some extra blood tests and sent them in with the report (which had to be referred) but was passed with no extra trouble. Link to comment Share on other sites More sharing options...
ThistleandRose Posted March 7, 2011 Share Posted March 7, 2011 We've just been marked as referred today so this really helps, thank you all. All the best to everyone. Link to comment Share on other sites More sharing options...
Guest sjk Posted March 8, 2011 Share Posted March 8, 2011 We have medicals on friday. My 3 yr old son was born prem at 30wks and as a result as mild hypertonic muscles which translates as mild cerebral palsy. BUT he is fine and is the same as any other only just 3 yr old. We have never claimed benefits for him and he is treated as every other child but the LABEL is the main concern. People just presume the worst and the truth is you wouldnt know he had a medical condition if you saw him. So any reassurance would be great! It would break my heart for that to be a reason to be refused because I wouldnt change him for the world he is perfect in every way and I hope they see that too. Link to comment Share on other sites More sharing options...
shaza Posted March 8, 2011 Author Share Posted March 8, 2011 We have medicals on friday. My 3 yr old son was born prem at 30wks and as a result as mild hypertonic muscles which translates as mild cerebral palsy. BUT he is fine and is the same as any other only just 3 yr old. We have never claimed benefits for him and he is treated as every other child but the LABEL is the main concern. People just presume the worst and the truth is you wouldnt know he had a medical condition if you saw him. So any reassurance would be great! It would break my heart for that to be a reason to be refused because I wouldnt change him for the world he is perfect in every way and I hope they see that too. I agree with you 100%, my son is no different to the other 3/4yr olds in his nursery, he has the best personality ever & I wouldnt change a single thing about him and for this to be an issue is kind of upsetting because its like they are pointing out a disability which Ive never seen his condition as. Fingers crossed for us all & good luck for friday x Link to comment Share on other sites More sharing options...
helenarthur Posted March 9, 2011 Share Posted March 9, 2011 [ PLEASE, WHAT WAS HIS BLOOD PRESSURE THAT HE HAD TO HAVE IT TAKEN 3 TIMES AT DOCTORS. sAME HAPPENED TO MY HUBBY, LOOK FWD TO HEARING FROM YOU. HELEN QUOTE=MaybeOz;1013928]At the time of our medicals .... Hubby had high blood pressure, actually it was "white coat syndrome" and, eventually (several weeks after our actual medicals), he finally got the required 3 OK readings done at our GPs. Our middle son has / had SVT (Supraventricular Tachycardia) which is a heart condition and was taking daily beta blocker medication at the time. I had three slipped & ruptured discs in my back. Ongoing medical problems - Hubby gets severe gout and takes daily medication for it. Apart from that, everything else was fine!! We passed our medicals :yes: Good luck Kari :wubclub: Link to comment Share on other sites More sharing options...
waynecaz Posted March 9, 2011 Share Posted March 9, 2011 Hiya all , iam worried about my hubby being to much over weight .. for when we go for our meds . Anyone had this problem .. cheers carolyn x Link to comment Share on other sites More sharing options...
Guest The Rustys Posted March 9, 2011 Share Posted March 9, 2011 Will keep all crossed for you and your family Good luck Link to comment Share on other sites More sharing options...
Guest bigbird Posted March 9, 2011 Share Posted March 9, 2011 hi we had our medicals last week and they found my oh has ot high blood pressure he was told to go to ur own gp for check ,our gp put him on tablets last week and he has to go back in 3 weeks for a check up so they said they will not send medical off till he goes back to our gp ,then we got phone call yest to say oh has to go back to clinic for another chest xray as there is a shadow on hes!!!but they did say it could be a nipple shadow so they have to redo it with nipple covers???anyone else had this happen to them i have read it is fairly common but we cant help panicking now that it is all ok as if they do find anything i really dont know where we will stand?After two years waiting around we are up and down on this flipping roller coaster!!! Link to comment Share on other sites More sharing options...
Guest degnantitanboy Posted March 9, 2011 Share Posted March 9, 2011 Hiya all ,iam worried about my hubby being to much over weight .. for when we go for our meds . Anyone had this problem .. cheers carolyn x Hi Was worried aout this too as we have our medicals tomorrow. Read another post which had a link to the panel doctors' guidelines regarding BMI. Remember reading that it said a BMI of under 30 is acceptable but if your BMI is between 30 and 40, it would only be referred if there was an associated medical problem eg high blood pressure, diabetes etc. Maybe someone else can clarify this, can't find the original post. Cheers Stuart & Janice Link to comment Share on other sites More sharing options...
amanda12 Posted March 9, 2011 Share Posted March 9, 2011 Hello bigbird. Re nipple covers, this happened to my mum at a routine X-ray. She was called back urgently due to a small density. When she got there she had to tape paperclips to her nipples before they did the new X-ray!!!!! Clearly cost cutting lol. Everything was ok it has just been the nipple they could see. Apparently sometimes they show up more than others tines. Good luck. Hope it's all ok for all of you. Amanda Link to comment Share on other sites More sharing options...
Guest jubbsy Posted March 10, 2011 Share Posted March 10, 2011 we got our visa today. My hubby is an amputee with one leg. We had a few sleepless nights when his meds were referred but we rang up the diac last night and got approved at 04:24 this morning!!! Link to comment Share on other sites More sharing options...
Guest The Rustys Posted March 10, 2011 Share Posted March 10, 2011 HiWas worried aout this too as we have our medicals tomorrow. Read another post which had a link to the panel doctors' guidelines regarding BMI. Remember reading that it said a BMI of under 30 is acceptable but if your BMI is between 30 and 40, it would only be referred if there was an associated medical problem eg high blood pressure, diabetes etc. Maybe someone else can clarify this, can't find the original post. Cheers Stuart & Janice Hi there I also read that post and the link. BMI 40+ they will look for associated medical conditions. Try not to worry - really what can you do now??? says she whilst panicking!!!! :wacko: Link to comment Share on other sites More sharing options...
shaza Posted March 11, 2011 Author Share Posted March 11, 2011 we got our visa today. My hubby is an amputee with one leg. We had a few sleepless nights when his meds were referred but we rang up the diac last night and got approved at 04:24 this morning!!! Congratulations to you guys, fantastic news x Link to comment Share on other sites More sharing options...
boganbear Posted March 11, 2011 Share Posted March 11, 2011 hi we had our medicals last week and they found my oh has ot high blood pressure he was told to go to ur own gp for check ,our gp put him on tablets last week and he has to go back in 3 weeks for a check up so they said they will not send medical off till he goes back to our gp ,then we got phone call yest to say oh has to go back to clinic for another chest xray as there is a shadow on hes!!!but they did say it could be a nipple shadow so they have to redo it with nipple covers???anyone else had this happen to them i have read it is fairly common but we cant help panicking now that it is all ok as if they do find anything i really dont know where we will stand?After two years waiting around we are up and down on this flipping roller coaster!!! I had a shadow on my lung, probably caused by an ordinary chest infection. My x rays had to be sent to Sydney for referral but got the OK in 3 weeks. The case officer said that anything out of the ordinary is sent for referal as a standard procedure even when many things are obviously relatively minor. Link to comment Share on other sites More sharing options...
lizzy27 Posted March 13, 2011 Share Posted March 13, 2011 I have epilepsy & take medication everyday. My neurologist even said I have a big epilepsy problem & I still passed no probs. Hope this helps Link to comment Share on other sites More sharing options...
Ammosaph Posted March 13, 2011 Share Posted March 13, 2011 Thanks everyone for this thread. I had my meds on Friday and have to get a GP letter about one of my responses (I hope you don't mind but I'd rather not say what its for). I've been worrying about it since Friday - I am seeing my GP on Monday. The doctor on Friday told me that provided the GP supported what I said (and I can see no reason why he wouldn't) it shouldn't be a problem. Still its a worry all the same. I agree with one of the earlier posts - this really has been a roller coaster of a journey. We seem to be so close now but here's yet another hurdle.... Best wishes to all of you who are also trying to get through this final stage. Link to comment Share on other sites More sharing options...
Quoll Posted March 13, 2011 Share Posted March 13, 2011 Hi all.We had our meds on friday and all was going well until they got to my 4yr old son who has a medical condition called Tuberous Sclerosis. Basically it means he has benign tumours on his brain & in his heart which causes Epileptic fits. Sounds serious but if you knew him you would see he's a normal 4yr old, no learning/behaviour problems on any other problems. He was diagnosed in January 2009 after having 5 seizures in a week. He was put on medication (which he takes twice a day) and thank god he has been seizure free since. His consultant is hoping to take him off his meds if he is seizure free for 3 years, fingers crossed. The dr that did our meds has asked for more info on his condition, and long term prognosis even though we gave her 12 pages of reports to read. Im very concerned now that they wont give us a visa because of this so I wanted to know what medical condition you have had and still been given a visa? Has anyone with epilepsy or simular ever been given a visa? Also if we are refused can we appeal? Sorry its long but really worried and need advice please :unsure: Thanks x I guess it may all come down to what sort of educational provision he may require. I have known of several kids with TS and they have all been in special schools here. I believe there are varying degrees of the condition and so it is quite possible that there were other kids out there who did not require special ed support. The general impression one gets from cases like this is that if a child has special needs enough to get them into disability support in Australia, there is a good likelihood that they will be refused a visa. I would suggest that if you dont have a good agent who specializes is medical conditions (George Lombard and Peter Bollard are names that usually crop up) and if you find that the condition is a barrier to your visa, then you seek their advice. Good luck! Link to comment Share on other sites More sharing options...
_shel Posted March 13, 2011 Share Posted March 13, 2011 I have epilepsy for which I have had brain surgery to remove part of my temprol lobe, still take meds, have partial and tonic seizures how many each month/week depends on lots of stuff. I had a long wait and had to produce an extra med report from my neurologist. I'd already included one from my GP & I got my visa. Link to comment Share on other sites More sharing options...
gareth and lisa Posted March 13, 2011 Share Posted March 13, 2011 Great thread, hubby has arthritis in both hips although one replaced last year so suppose only one now. And our son has mild autism, has no problems really in a mainstream school doing very well with little support but know both will get us referred. Reading other posts above i think we have got off lightly, lol. Lisa Link to comment Share on other sites More sharing options...
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